If you are a researcher interested in using the Registry as a research tool either for recruitment purposes or data analysis, please visit our website at https://whr.northwestern.edu or contact Nadia (Reynolds) Johnson, MA, at 312-503-1662 to ask how you can apply.
Every month the Institute publishes an e-newsletter focused on a specific topic in women's health. To view these, click here.
The mission of the Agency for Health Care Policy and Research is to support, conduct, and disseminate research that improves access to care and the outcomes, quality, cost, and utilization of health care services. The research sponsored and conducted by the Agency provides better information that enables better decisions about health care.
The Office of Research on Women’s Health (ORWH) 1) advises the NIH Director on matters relating to women’s health research; 2) enhances research related to diseases and conditions that affect women; 3) ensures that research supported by NIH adequately includes women’s health; 4) ensures that women are represented in research; 5) develops opportunities for women in the sciences; and 6) supports women’s health research.
The Organization for the Study of Sex Differences (OSSD) works to enhance the knowledge of sex/gender differences by facilitating interdisciplinary communication and collaboration among scientists and clinicians of diverse backgrounds.
A list of free publications that provide information on a variety of women's health topics targeted to the community.
Institute of Medicine: Sex-specific Reporting of Scientific Research, Workshop Summary, National Academy of Sciences, (2012).
Institute of Medicine: Sex Differences and Implications for Translational Neuroscience Research, Workshop Summary, National Academies Press, Washington DC, Dec 2010.
Institute of Medicine: Women's Health Research: Progress, Pitfalls, and Promise, National Academy Press, Washington, DC, (2010).
U.S. Dept. of Health and Human Services, National Institutes of Health, Office of Research on Women's Health. Strategic Plan: Moving into the Future with New Dimensions and Strategies: A Vision for 2020 for Women's Health Research. (2010) NIH Publ. # 10-7606.
Legato MJ: Principles of Gender-Specific Medicine. Elsevier, Inc, San Diego. (2004).
Institute of Medicine: Exploring the Biological Contributions to Human Health: Does Sex Matter? National Academy of Press, Washington D.C., (2001).
United States General Accounting Office. NIH clinical trials: Various factors affect patient participation. http://www.gao.gov/archive/1999/he99182.pdf, (1999).
National Women’s Law Center and Oregon Health and Science University. Making the Grade on Women's Health: A national and state-by-state report card. http://hrc.nwlc.org/Default.aspx, (2007).
Simon V, Hai T, Williams S, Adams E, Ricchetti K, Marts S: National Institutes of Health: Intramural and extramural support for research on sex differences, 2000-2003. Society for Women's Health Research, Washington, D.C. (2005).
Carnes M, Morrissey C, Geller SE: Women's health and women's leadership in academic medicine: Hitting the same glass ceiling? J Womens Health (Larchmt) 17(9), 1453-1462 (2008).
Kim, AK, Tingen C, Woodruff, TK. Sex bias in trials and treatment must end. Nature. (June 2010).
Whitacre CC: Sex differences in autoimmune disease. Nat Immunol 2(9), 777-780 (2001).
NEW REPORT RELEASED JUNE 2011- 10Q Report: Advancing Women's Heart Health through Improved Research, Diagnosis and Treatment. The Society for Women’s Health Research (SWHR) and WomenHeart: The National Coalition for Women with Heart Disease released the long awaited 2011 10Q Report that is an update to their 2006 10Q Report that identified the top 10 unanswered research questions concerning heart disease in women. Many of these questions have yet to be answered and this report serves as a recommendation to research who are designing new projects.
Hogg ME, Varu VN, et al. Effect of Nitric Oxide on Neointimal Hyperplasia based on Sex and Hormone Status. Free Radic Biol Med. 2011 Jan 20. [Epub ahead of print] PubMed PMID: 21256959. This research was funding in part from the Institute for Women's Health Research!
Hsia J, Rodabough R, Manson J, Liu S, Freiberg M, Graettinger W, Rosal M, Cochrane B, Lloyd-Jones D, Robinson J, Howard B: Evaluation of the American Heart Association cardiovascular disease prevention guideline for women. Circ Cardiovasc Qual Outcomes Feb 16. [Epub ahead of print] (2010).
Melloni C, Berger J, Wang T, Gunes F, Stebbins A, Pieper K, Dolor R, Douglas P, Mark D, Newby K: Representation of women in randomized clinical trials of cardiovascular disease prevention. Circ Cardiovasc Qual Outcomes Feb 10. [Epub ahead of print] (2010).
Mosca L, Ferris A, Fabunmi R, Robertson RM: Tracking women's awareness of heart disease: An American Heart Association national study. Circulation 109(5), 573-579 (2004).
Mosca L, Mochari-Greenberger H, Dolor R, Newby K, Robb K: Twelve-year follow up of American women's awareness of cardiovascular disease risk and barriers to heart health. Circ Cardiovasc Qual Outcomes Feb 10. [Epub ahead of print] (2010).
Vaccarino A: Ischemic heart disease in women: Many questions, few facts. Circ Cardiovasc Qual Outcomes Feb 16. [Epub ahead of print] (2010).
Women and Cardiovascular Diseases-Statistics, 2004 American Heart Association. http://www.americanheart.org/presenter.jhtml?identifier=3000941.
de Perrot M, Licker M, Bouchardy C, Usel M, Robert J, Spiliopoulos A: Sex differences in presentation, management, and prognosis of patients with non-small cell lung carcinoma. J Thorac Cardiovasc Surg 119(1), 21-26 (2000).
Wilsgaard T, Schirmer H, Arnesen E: Impact of body weight on blood pressure with a focus on sex differences: The tromso study, 1986-1995. Arch Intern Med 160(18), 2847-2853 (2000).
Giamberardino MA, Berkley KJ, Lezzi S, de Bigontina P, Vecchiet L: Pain threshold variations in somatic wall tissues as a function of menstrual cycle, segmental site and tissue depth in non-dysmenorrheic women, dysmenorrheic women and men. Pain 71(2), 187-197 (1997).
Stening K, Eriksson O, Wahren L, Berg G, Hammar M, Blomqvist A: Pain sensations to the cold pressor test in normally menstruating women: Comparison with men and relation to menstrual phase and serum sex steroid levels. Am J Physiol Regul Integr Comp Physiol 293(4), R1711-1716 (2007).
Anthony M, Berg MJ: Biologic and molecular mechanisms for sex differences in pharmacokinetics, pharmacodynamics, and pharmacogenetics: Part II. J Womens Health Gend Based Med 11(7), 617-629 (2002).
Harris RZ, Benet LZ, Schwartz JB: Gender effects in pharmacokinetics and pharmacodynamics. Drugs 50(2), 222-239 (1995).
Kashuba AD, Nafziger AN: Physiological changes during the menstrual cycle and their effects on the pharmacokinetics and pharmacodynamics of drugs. Clin Pharmacokinet 34(3), 203-218 (1998).
Kim ES, Menon V: Status of women in cardiovascular clinical trials. Arterioscler Thromb Vasc Biol 29(3), 279-283 (2009).
Geller SE, Adams MG, Carnes M: Adherence to federal guidelines for reporting of sex and race/ethnicity in clinical trials. J Womens Health (Larchmt) 15(10), 1123-1131 (2006).
Vidaver RM, Lafleur B, Tong C, Bradshaw R, Marts SA: Women subjects in NIH-funded clinical research literature: Lack of progress in both representation and analysis by sex. J Womens Health Gend Based Med 9(5), 495-504 (2000).
Department of Health and Human Services NIH monitoring adherence to the NIH policy on the inclusion of women and minorities as subjects in clinical research. Comprehensive Report: Tracking of Human Subjects Research as Reported in Fiscal Year 2005 and Fiscal Year 2006 (2007).
Killien M, Bigby JA, Champion V et al.: Involving minority and underrepresented women in clinical trials: The national centers of excellence in women's health. J Womens Health Gend Based Med 9(10), 1061-1070 (2000).
Underwood SM: Minorities, women, and clinical cancer research: The charge, promise, and challenge. Ann Epidemiol 10(8 Suppl), S3-12 (2000).
Brown DR, Fouad MN, Basen-Engquist K, Tortolero-Luna G: Recruitment and retention of minority women in cancer screening, prevention, and treatment trials. Ann Epidemiol 10(8 Suppl), S13-21 (2000).
Ding EL, Powe NR, Manson JE, Sherber NS, Braunstein JB: Sex differences in perceived risks, distrust, and willingness to participate in clinical trials: A randomized study of cardiovascular prevention trials. Arch Intern Med 167(9), 905-912 (2007).
Rogers JL, Johnson TR, Brown MB, Lantz PM, Greene A, Smith YR: Recruitment of women research participants: The Women's Health Registry at the University of Michigan. J Womens Health (Larchmt) 16(5), 721-728 (2007).
Hutchins LF, Unger JM, Crowley JJ, Coltman CA, Jr., Albain KS: Underrepresentation of patients 65 years of age or older in cancer-treatment trials. N Engl J Med 341(27), 2061-2067 (1999).
National Institute of Health: NIH guidelines for the inclusion of women and minorities as subjects in clinical research. Notice. Fed Register 59(14508) (1994).
Paul KN, Laposky AD, Turek FW: Reproductive hormone replacement alters sleep in mice. Neuroscience Letters 463, 239–243 (2009).
Paul KN, Losee-Olson S, Pickney L, Turek FW: The ability of stress to alter sleep in mice is sensitive to reproductive hormones. Brain Research 11 (1305) 74-85 (2009).
Rossouw JE, Anderson GL, Prentice RL et al.: Risks and benefits of estrogen plus progestin in healthy postmenopausal women: Principal results from the women's health initiative randomized controlled trial. JAMA 288(3), 321-333 (2002).
Ridker PM, Cook NR, Lee IM et al.: A randomized trial of low-dose aspirin in the primary prevention of cardiovascular disease in women. N Engl J Med 352(13), 1293-1304 (2005).
The Substance Abuse & Mental Health Services Administration (SAMHSA) has just release a free publication called Treatment Improvement Protocol (TIP) 51, Substance Abuse Treatment: Adddressing the Specific Needs of Women, that will help professionals provide effective, up-to-date treatment to women with substance use disorders by taking into account their unique treatment needs. To order by phone call 1-877-726-4727 and ask for publication order number (SMA09-4426) or go to http://ncadistore.samhsa.gov/catalog/productDetails.aspx?ProductID=18244
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